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Founded by Rich Bendis

genes

Growing up in Devon in the 1980s, brothers James* and Matt* had to be careful with their antics–a cut or bruise could land them in hospital.

They have haemophilia, a genetic disease where the blood doesn’t clot efficiently due to a lack of a clotting protein. It’s plagued their family for generations. Their granny’s brother died from it, and they, their uncle and a younger cousin have long managed it by injecting the missing protein to prevent bleeds.